Category: Cancer


Let me set the scene. It’s Friday morning. I’ve just used the bathroom, a perfectly ordinary human activity, except now I’m standing there wondering why my body has decided to add a little encore. A few uninvited drops. No reason. No warning. Just my nervous system freelancing.

Welcome to my life, where even the most mundane bodily functions have become a neurological adventure.

That was Friday morning. By Friday night, I had a severe ache digging into the left side of my eye socket like someone had parked a Buick behind my face. I took two Advil and went to sleep like a reasonable person. A hero, even. At 2:45 a.m., I was awakened by what I can only describe as my body filing a formal complaint with management. Not quite nausea. Not quite dizziness. More like my stomach and my inner ear had called a joint emergency meeting and didn’t invite the rest of me. I genuinely thought: this is it. This is how it ends. Not fighting a villain. Standing in the dark next to my bathroom at 2:45 in the morning.

I took a clonazepam and an ondansetron, because apparently I’ve become the kind of person who has a 2:45 a.m. protocol. And it worked. I went back to sleep. Superman lives to save another day.

But here’s the thing they don’t tell you about being Superman: the cape gets heavy.

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The first time I went public with Parkinson’s, my bladder made the announcement. I have not talked about Kappa Light Chain Deposition Disease. It’s the enemy within. It’s the cancer that will likely kill me.

Consider this the follow-up nobody asked for. You’re welcome.

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Last night, Kanako, a dear friend who is no longer with us, visited me in a dream. Her presence was comforting, and the message she brought was simple, yet profound. “Not too long. You’re almost there.”

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Quick Update: It’s a Bitch

When I signed off in April, I did not check my email. Upon logging in this afternoon, I read several emails from readers requesting an update. So, I will start by stating that I feel a little like Josie Rubio (A Pain in The Neck cancer blog), who said to some effect that she was beginning to feel good and thinking of returning to work. Of course, Ms. Rubio never returned.

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Relinguishing Control

Suleika Jaouad stated that to be a patient is to relinquish control. At this moment, I feel the same. Maybe I was naive, but I thought I could stay in control, but my body is losing the battle. Yes, of course, one loses your body to medical clinicians, treatment strategies, and physical breakdowns. However, my latest battle was humiliating: blood. Blood everywhere. And I mean a lot of it.

Last night, I traveled back from Tucson. The plane ride was relatively uneventful. No delays. The weather was fantastic. The only passenger screaming was a baby in the back of the plane. I rode first class, and no passenger attempted to open a door. However, what typically starts out well can go horribly wrong with little warning.

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The vehicle for my mother’s lease was ending, so the big task for February 12th was to visit the Honda dealer. After several hours of weighing the pros and cons, she purchased her current Civic HR-V. The night had already swallowed the remaining daylight, and we decided to have dinner at the International House of Pancakes (IHOP). After receiving our meal, we sat in the corner booth, and she asked for details about Light Chain Deposition Disease (LCDD). It wasn’t the conversation I thought about having at an IHOP over scrambled eggs, but I provided high-level information about LCDD, testing, and symptoms. “Well, hopefully, they’ll eradicate it from you this year.”

“Mom, I am terminal. It’s unclear when, maybe in 6 months or maybe ten years, but unless some miracle pops on the horizon, LCDD will likely end my life. Doctors hope to keep my body at its current level of dysfunction.”

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Television is a vast pornographic wasteland of scam health products. I received free samples of Balance of Nature, green seaweed tablets from Asia, and other supposed natural health items. Forbes reviewed Balance of Nature, noting that it has received warnings from the U.S. Food and Drug Administration (FDA) of unverified health claims. I also received an article (and subsequent invitation) to attend a consultation with a Missouri practitioner who provides stem cells. I declined the offer after noting that state investigators once determined the clinician’s cell-based regenerative medicine diagnosed and treated bogus illnesses and repeatedly ordered unnecessary and excessive lab tests. However, the truth is I want to die. 

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72 Days

November 13, 2023, seems like forever. [Between then and now] That’s 72 days. That’s two months and 11 days (seventy-two days) since my last post. The time variance seems like forever. Or, borrowing from David Whyte’s Heart Aroused, I turned my head for only a moment, and it appeared forever. I missed my Thanksgiving, Christmas, and New Year’s Eve posts. It’s been a hectic 72 days. 

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Pushing Through

I don’t think about overcoming cancer. I can’t. Multiple Myeloma is undefeatable. Most days, one can hardly recognize that I fight past overwhelming fatigue and nausea. I do it because I have no choice. I am just an average Information Technology worker trying to make it until 65 when federal healthcare benefits become available. I could work from home, but I chose to push myself. The question therein is, “Why?”

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2:36 AM

Pain is swallowing my body. Walking 250 steps or more brings extreme tightness in the groins both of both legs and lower calves. To that, former WGN radio host Al Lerner would commically retort, ‘a groin is a terrible thing to pull.’ Spasms crept into my right bicep, forearm, through to my fingers, and radiates significant pain when lifting anything above the shoulder. Through it all, I keep reading previous posts on ‘What’s a good life’ and asking myself, “Am I living it?” That exchange is often followed by remembering something from my past, usually negative, and trying to mentally reconcile that person looking back through the mirror.

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