Archive for February, 2024


Relinguishing Control

Suleika Jaouad stated that to be a patient is to relinquish control. At this moment, I feel the same. Maybe I was naive, but I thought I could stay in control, but my body is losing the battle. Yes, of course, one loses your body to medical clinicians, treatment strategies, and physical breakdowns. However, my latest battle was humiliating: blood. Blood everywhere. And I mean a lot of it.

Last night, I traveled back from Tucson. The plane ride was relatively uneventful. No delays. The weather was fantastic. The only passenger screaming was a baby in the back of the plane. I rode first class, and no passenger attempted to open a door. However, what typically starts out well can go horribly wrong with little warning.

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The vehicle for my mother’s lease was ending, so the big task for February 12th was to visit the Honda dealer. After several hours of weighing the pros and cons, she purchased her current Civic HR-V. The night had already swallowed the remaining daylight, and we decided to have dinner at the International House of Pancakes (IHOP). After receiving our meal, we sat in the corner booth, and she asked for details about Light Chain Deposition Disease (LCDD). It wasn’t the conversation I thought about having at an IHOP over scrambled eggs, but I provided high-level information about LCDD, testing, and symptoms. “Well, hopefully, they’ll eradicate it from you this year.”

“Mom, I am terminal. It’s unclear when, maybe in 6 months or maybe ten years, but unless some miracle pops on the horizon, LCDD will likely end my life. Doctors hope to keep my body at its current level of dysfunction.”

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A Cranky Heart

When cancer weaves its way into one’s life, the impacts can be significant. After working in the health car business for 23 years, I was neglectful of my health. I change my perspective after a cranky heart let me know, in no uncertain terms, that I am a piss-poor model for proactive healthcare advocate. I scheduled a quick trip to Tucson, AZ, to assist my mother with some financial matters. The journey from Ohare International to Tucson Internal began with hastily packing on Friday. I went to the American Airlines terminal at Ohare, would spend several hours flying, and get dumped off in Tucson. My mother would pick me; I’d deal with some financial matters, complete her 2023 taxes, laugh and joke for a few days, and return to Chicago.

Everything was on track until I went to use Ohare’s Admirals Club. There was no issue with getting in. “Club Card, Mr. UB?” I swiped, and I heard the ‘beep’. In I went. Did I notice the shoulder blade pain from left to right, then right to left while walking the terminal? Sure. It’s the same pain I experienced hundreds of times. ‘Attributed to osteoarthritis’ or ‘no problems now,’ my doctors would always claim. I decided to enter the bathroom. The stall was spacious and clean. The left side chest pain was immediate and sudden. Usually, when such pain occurs, the pain lasts five seconds at most. It didn’t.

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Television is a vast pornographic wasteland of scam health products. I received free samples of Balance of Nature, green seaweed tablets from Asia, and other supposed natural health items. Forbes reviewed Balance of Nature, noting that it has received warnings from the U.S. Food and Drug Administration (FDA) of unverified health claims. I also received an article (and subsequent invitation) to attend a consultation with a Missouri practitioner who provides stem cells. I declined the offer after noting that state investigators once determined the clinician’s cell-based regenerative medicine diagnosed and treated bogus illnesses and repeatedly ordered unnecessary and excessive lab tests. However, the truth is I want to die. 

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