Tag Archive: A Good Death


A few weeks ago, I read a column by Virginia DeLuca. At sixty, her husband told her he wanted a divorce so he could have a child with a younger woman. As she wondered aloud about reentering the dating world at sixty, she dropped a line that made me laugh—and then stop. In essence, DeLuca stated, “… I had more past than future.” Her comment hit home. “Yes,” I whispered following along, “… there are more days behind than ahead.” DeLuca was spot on. It was funny. Classic. Clean. No melodrama. Just a raised eyebrow of truth. And once you hear a sentence like that, you can’t unhear it.

At a certain point in life, time stops feeling theoretical. It becomes visible. Finite. You’re not morbid about it. You’re just… honest. The future is no longer an open field; it’s a defined stretch of road. Still meaningful. Still real. But no longer infinite. I say all this because I’ve been waking up between 1:30 and 3:30 in the morning for years now. Not from anxiety, exactly. Not always from pain. Just awake. It’s the time when the mind is stripped of daytime defenses and the body refuses to lie. It’s also the period that time asks questions.

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I dreamed the other night about dying. Not the dramatic kind. There was no bright tunnel. No booming voice. No clipboard.

I met a guide. Not God — not that kind of capital-G certainty. More like a presence. An angel, maybe. A mentor. Something calm and familiar, as if it had known me for a long time without ever needing to announce itself.

The guide didn’t speak much. It didn’t accuse or congratulate. It simply showed me.

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Last night, Kanako, a dear friend who is no longer with us, visited me in a dream. Her presence was comforting, and the message she brought was simple, yet profound. “Not too long. You’re almost there.”

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I Thirst

I am tired, but my body refuses to die. It’s the constant hum of pain. Living in a body that constantly hurts is an exhausting experience. It’s not just the sharp, stabbing moments or the dull, throbbing aches; it’s the constant, low-grade hum of pain that fills every quiet moment. It’s the kind of tired that sleep can’t fix, a deep-seated weariness that seeps into your bones and colors every thought.

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The vehicle for my mother’s lease was ending, so the big task for February 12th was to visit the Honda dealer. After several hours of weighing the pros and cons, she purchased her current Civic HR-V. The night had already swallowed the remaining daylight, and we decided to have dinner at the International House of Pancakes (IHOP). After receiving our meal, we sat in the corner booth, and she asked for details about Light Chain Deposition Disease (LCDD). It wasn’t the conversation I thought about having at an IHOP over scrambled eggs, but I provided high-level information about LCDD, testing, and symptoms. “Well, hopefully, they’ll eradicate it from you this year.”

“Mom, I am terminal. It’s unclear when, maybe in 6 months or maybe ten years, but unless some miracle pops on the horizon, LCDD will likely end my life. Doctors hope to keep my body at its current level of dysfunction.”

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Television is a vast pornographic wasteland of scam health products. I received free samples of Balance of Nature, green seaweed tablets from Asia, and other supposed natural health items. Forbes reviewed Balance of Nature, noting that it has received warnings from the U.S. Food and Drug Administration (FDA) of unverified health claims. I also received an article (and subsequent invitation) to attend a consultation with a Missouri practitioner who provides stem cells. I declined the offer after noting that state investigators once determined the clinician’s cell-based regenerative medicine diagnosed and treated bogus illnesses and repeatedly ordered unnecessary and excessive lab tests. However, the truth is I want to die. 

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Telling My Mother

Just before Christmas of 2023, I told my mother that I had a life-threatening disease with no known cure. I provided all the sordid details: how I did quite a bit of internet searching. Yeah, sure, I self-diagnosed myself with everything from work-related fatigue to amyotrophic lateral sclerosis, long-COVID, and finally, progressive supranuclear palsy. I researched close to twenty different diseases. But at the end of the day, the only thing that fits (at least for now) is Light Chain Deposition Disease (LCDD) or AL Amyloidosis. I took her through all the appointments, all the tests, and all my frustrations. I skipped the part about survival: from 1 month to 10 years. I mean, hell if I know.

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Work, exhaustion, movement. Work, exhaustion, movement. If someone asked about my life’s cycle, that would be it: ‘work, exhaustion, movement.’ It’s no epic mystery. And at the end of the day, most cancer patients probably believe few know their cycle or the actual intricacies of living day-to-day or existence. There’s no magic. There’s no spark. No one knows what it’s like to sit in some poorly designed cancer waiting room and have some clinician take away the last remnants of their life.

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Researchers report that 63% of physicians experienced burnout in 2021. It’s important to understand that burnout is different from mental illness. There are a couple of symptoms of burnout. Consequences of job burnout include excessive stress, fatigue, insomnia., sadness, alcohol or substance misuse, heart disease, high blood pressure, or type 2 diabetes. I am unsure if I have burnout. I believe I do, but I have not received an official clinical diagnosis. Of course, many factors contribute to burnout, including the stress of treating COVID-19 patients for more than two years. Unfortunately, none of the burnout’s other symptoms are valid outside of exhaustion and sadness. 

My former boss stated I should take advantage of medical leave (if required). I have not thought about it too much, but should one? Does the company have an obligation to accommodate my inability to perform the job? If so, for how long? Given that I am saddled with a terminal disease, what is honorable and not? However, taking advantage of such leave means stepping outside my comfort zone to have that required conversation.

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Finding gratefulness can be damn tricky. The thought comes not from despair or from some illusionary dream busted from a lack of effort. Ralph Waldo Emerson wrote that one should cultivate the habit of being grateful for every good thing that comes and give thanks continuously for all things that contributed to your advancement. Phooey to that. Several weeks past cold-turkey of pain medications, listening to persistent tinnitus, and walking like an extra on the set of some zombie episode leaves me sick of it all.

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