Work, exhaustion, movement. Work, exhaustion, movement. If someone asked about my life’s cycle, that would be it: ‘work, exhaustion, movement.’ It’s no epic mystery. And at the end of the day, most cancer patients probably believe few know their cycle or the actual intricacies of living day-to-day or existence. There’s no magic. There’s no spark. No one knows what it’s like to sit in some poorly designed cancer waiting room and have some clinician take away the last remnants of their life.
Tag Archive: A Good Death
As new Parkinson’s symptoms peel back any notion that my body can live in some delicate truce, I continue to reassess what I can and cannot do. For example, an Arizona State University study of Muhammad Ali’s public speaking revealed Ali exhibited symptoms of slowed and slurred speech several years before diagnosis. Researchers determined that Ali’s syllables per second slowed by 26 percent over thirteen years. But slurred speech was never my symptom, at least at this moment.
This week, left-hand tremor has become more prominent with the hands at the sides. A ‘Keyesence Detection’ test revealed, “The person has characteristics in their typing similar to people with early to mild Parkinson’s Disease. Tremor and movement exceeded normal ranges. An asymmetrical tremor of 4-6 Hz suggests Parkinson’s Tremor.’ But I already knew this. A tremor while typing has been the bane of my existence for several years. Tremor with the hand at my side has not. That’s new. That means Parkinson’s has progressed, even if ever so slightly.
The patient has to be proactive. May are not. Need an example? when the doctor seemed ready to breeze past initial blood results showing normal white blood cell counts, but red blood cells suddenly below normal, I forced her to opine. “Oh,” she mumbled while looking at the computer. “These results are way out whack. We need to run more through some more blood tests. I need to see if your results are iron-deficient anemia or something else. I don’t believe you have colon cancer, for the blood results are right for Colon Cancer. So, an Iron+TBIC+Ferritin blood test will be the first test.”Proactivity ensured doctors did not miss critical information, but I am unsure what ‘not right means.’
In the film My Life, Bob Jones begins making videotapes of himself after receiving a terminal diagnosis. In the tapes, he outlines his life, beliefs, and life lessons. However, at one point, Jones whispers to his son, “Dying is a really hard way to learn about life.” The ending scene is touching: At the time of death, he is shown on a metaphysical roller coaster with his hands releasing the railing, raising his arms freely in the air. Metaphorically, he lets go of life and finally enjoys the ride. In a way, the film’s director provides viewers the opportunity to contemplate what in their life requires healing.