Tag Archive: Death and Dying


A few weeks ago, I read a column by Virginia DeLuca. At sixty, her husband told her he wanted a divorce so he could have a child with a younger woman. As she wondered aloud about reentering the dating world at sixty, she dropped a line that made me laugh—and then stop. In essence, DeLuca stated, “… I had more past than future.” Her comment hit home. “Yes,” I whispered following along, “… there are more days behind than ahead.” DeLuca was spot on. It was funny. Classic. Clean. No melodrama. Just a raised eyebrow of truth. And once you hear a sentence like that, you can’t unhear it.

At a certain point in life, time stops feeling theoretical. It becomes visible. Finite. You’re not morbid about it. You’re just… honest. The future is no longer an open field; it’s a defined stretch of road. Still meaningful. Still real. But no longer infinite. I say all this because I’ve been waking up between 1:30 and 3:30 in the morning for years now. Not from anxiety, exactly. Not always from pain. Just awake. It’s the time when the mind is stripped of daytime defenses and the body refuses to lie. It’s also the period that time asks questions.

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I dreamed the other night about dying. Not the dramatic kind. There was no bright tunnel. No booming voice. No clipboard.

I met a guide. Not God — not that kind of capital-G certainty. More like a presence. An angel, maybe. A mentor. Something calm and familiar, as if it had known me for a long time without ever needing to announce itself.

The guide didn’t speak much. It didn’t accuse or congratulate. It simply showed me.

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Last night, Kanako, a dear friend who is no longer with us, visited me in a dream. Her presence was comforting, and the message she brought was simple, yet profound. “Not too long. You’re almost there.”

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Tales of the Week

My past week reads like Dickens.

It was the week of endings, it was the week of reckoning.
It was the loss of sound and the loss of someone dear.
It was a silence that screamed, and a goodbye that echoed.
It was the numbness of disbelief and the ache of memory.

It was a week where I still heard, but no longer understood.
It was a week where I spoke, but half my world no longer spoke back.
It was the unmaking of words — where recognition became a stranger,
and the simple gift of language disappeared behind a closed door.

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Relinguishing Control

Suleika Jaouad stated that to be a patient is to relinquish control. At this moment, I feel the same. Maybe I was naive, but I thought I could stay in control, but my body is losing the battle. Yes, of course, one loses your body to medical clinicians, treatment strategies, and physical breakdowns. However, my latest battle was humiliating: blood. Blood everywhere. And I mean a lot of it.

Last night, I traveled back from Tucson. The plane ride was relatively uneventful. No delays. The weather was fantastic. The only passenger screaming was a baby in the back of the plane. I rode first class, and no passenger attempted to open a door. However, what typically starts out well can go horribly wrong with little warning.

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The vehicle for my mother’s lease was ending, so the big task for February 12th was to visit the Honda dealer. After several hours of weighing the pros and cons, she purchased her current Civic HR-V. The night had already swallowed the remaining daylight, and we decided to have dinner at the International House of Pancakes (IHOP). After receiving our meal, we sat in the corner booth, and she asked for details about Light Chain Deposition Disease (LCDD). It wasn’t the conversation I thought about having at an IHOP over scrambled eggs, but I provided high-level information about LCDD, testing, and symptoms. “Well, hopefully, they’ll eradicate it from you this year.”

“Mom, I am terminal. It’s unclear when, maybe in 6 months or maybe ten years, but unless some miracle pops on the horizon, LCDD will likely end my life. Doctors hope to keep my body at its current level of dysfunction.”

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Like a Rock

Year three of this bullshit, and I am still alive. I was supposed to die a year back, but nope. I keep thinking of some lowly spiritual angel who dropped a wrench into the bicycle wheel of my life. And, “Bam.” The Unknown Buddhist is stuck on a plateau until the spokes get repaired. Thus, you meander through the days of repetitive medical cycles, poor humanistic skills of physicians, and just a lack of support.

This post is not about the Israeli-Gaza War. Neither is this about the Ukraine-Russia war. While both wars are significant, I focused on other crises. My life got sucked into a tangled in a trove of medical ups and downs, one damn appointment after another, and many that offered no value. At the end of several months, I’ve burned out my insurance HSA and wonder if this is what dying feels like. It’s the loneliness. The patient deals with it alone. And sometimes, the lack of humanity is spiritually painful.

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Researchers report that 63% of physicians experienced burnout in 2021. It’s important to understand that burnout is different from mental illness. There are a couple of symptoms of burnout. Consequences of job burnout include excessive stress, fatigue, insomnia., sadness, alcohol or substance misuse, heart disease, high blood pressure, or type 2 diabetes. I am unsure if I have burnout. I believe I do, but I have not received an official clinical diagnosis. Of course, many factors contribute to burnout, including the stress of treating COVID-19 patients for more than two years. Unfortunately, none of the burnout’s other symptoms are valid outside of exhaustion and sadness. 

My former boss stated I should take advantage of medical leave (if required). I have not thought about it too much, but should one? Does the company have an obligation to accommodate my inability to perform the job? If so, for how long? Given that I am saddled with a terminal disease, what is honorable and not? However, taking advantage of such leave means stepping outside my comfort zone to have that required conversation.

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Finding gratefulness can be damn tricky. The thought comes not from despair or from some illusionary dream busted from a lack of effort. Ralph Waldo Emerson wrote that one should cultivate the habit of being grateful for every good thing that comes and give thanks continuously for all things that contributed to your advancement. Phooey to that. Several weeks past cold-turkey of pain medications, listening to persistent tinnitus, and walking like an extra on the set of some zombie episode leaves me sick of it all.

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I Fear the Process, Not the End

Extreme nausea announced itself around 9:00 PM Saturday. Granted, it’s not the visitor you want knocking at your door, but arrive it did. “Hey, there. Mind if I come to visit? I’m just gonna find a comfy spot in your brain and batter you for the next 9 hours and make your life a living hell. What ya’ say?” Beneath the sometimes wickedly sarcastic humor and laughter of this blog lay this writer’s mental awareness of the darkness and horror of dying. This past weekend reiterated that I fear the process more than the destination.

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