Tag Archive: Cancer


Let me set the scene. It’s Friday morning. I’ve just used the bathroom, a perfectly ordinary human activity, except now I’m standing there wondering why my body has decided to add a little encore. A few uninvited drops. No reason. No warning. Just my nervous system freelancing.

Welcome to my life, where even the most mundane bodily functions have become a neurological adventure.

That was Friday morning. By Friday night, I had a severe ache digging into the left side of my eye socket like someone had parked a Buick behind my face. I took two Advil and went to sleep like a reasonable person. A hero, even. At 2:45 a.m., I was awakened by what I can only describe as my body filing a formal complaint with management. Not quite nausea. Not quite dizziness. More like my stomach and my inner ear had called a joint emergency meeting and didn’t invite the rest of me. I genuinely thought: this is it. This is how it ends. Not fighting a villain. Standing in the dark next to my bathroom at 2:45 in the morning.

I took a clonazepam and an ondansetron, because apparently I’ve become the kind of person who has a 2:45 a.m. protocol. And it worked. I went back to sleep. Superman lives to save another day.

But here’s the thing they don’t tell you about being Superman: the cape gets heavy.

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The first time I went public with Parkinson’s, my bladder made the announcement. I have not talked about Kappa Light Chain Deposition Disease. It’s the enemy within. It’s the cancer that will likely kill me.

Consider this the follow-up nobody asked for. You’re welcome.

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Quick Update: It’s a Bitch

When I signed off in April, I did not check my email. Upon logging in this afternoon, I read several emails from readers requesting an update. So, I will start by stating that I feel a little like Josie Rubio (A Pain in The Neck cancer blog), who said to some effect that she was beginning to feel good and thinking of returning to work. Of course, Ms. Rubio never returned.

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Relinguishing Control

Suleika Jaouad stated that to be a patient is to relinquish control. At this moment, I feel the same. Maybe I was naive, but I thought I could stay in control, but my body is losing the battle. Yes, of course, one loses your body to medical clinicians, treatment strategies, and physical breakdowns. However, my latest battle was humiliating: blood. Blood everywhere. And I mean a lot of it.

Last night, I traveled back from Tucson. The plane ride was relatively uneventful. No delays. The weather was fantastic. The only passenger screaming was a baby in the back of the plane. I rode first class, and no passenger attempted to open a door. However, what typically starts out well can go horribly wrong with little warning.

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72 Days

November 13, 2023, seems like forever. [Between then and now] That’s 72 days. That’s two months and 11 days (seventy-two days) since my last post. The time variance seems like forever. Or, borrowing from David Whyte’s Heart Aroused, I turned my head for only a moment, and it appeared forever. I missed my Thanksgiving, Christmas, and New Year’s Eve posts. It’s been a hectic 72 days. 

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2:36 AM

Pain is swallowing my body. Walking 250 steps or more brings extreme tightness in the groins both of both legs and lower calves. To that, former WGN radio host Al Lerner would commically retort, ‘a groin is a terrible thing to pull.’ Spasms crept into my right bicep, forearm, through to my fingers, and radiates significant pain when lifting anything above the shoulder. Through it all, I keep reading previous posts on ‘What’s a good life’ and asking myself, “Am I living it?” That exchange is often followed by remembering something from my past, usually negative, and trying to mentally reconcile that person looking back through the mirror.

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Invincibility

A friend knocked at my door and dropped off a bottle of seaweed pills. “It will fix metabolism and fight cancer.” Of course, I accepted the offer unconditionally. After some small talk, I shut the door and tossed them on the counter behind my toaster with the other worthless crap I received. I don’t take ‘magic’ supplements because they don’t work. And technically, it’s hard to do something when there’s a lack of faith. Supplements do not make you invincible.

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Cancer Medical Costs

Through mid-May, over $21,000 of cancer medical tests were completed. The statistics took me by surprise. “Hell, it’s only May.” I quipped. “There are seven more months left in the year. And that’s without any treatment.” My HSA account has withered from $2,500.00 to $863.00. That means I must decide what medical treatments will not be performed this year. More than likely, that scheduled eye exam and glasses are out of the question. Dental cleaning and tooth crown are out as well. Should I have neck fusion, lumbar fusion, or no fusion? If I choose fusion, should I postpone the cancer treatment? Installation of new brakes for my car? No. The nephew’s wedding gift budget gets decreased. New clothes? No, not this year. Trips to Wrigley Field? Out of the question. Am I thinking about buying lunch at the cafeteria? Nope. Want to see that new movie? No, not an option. When experiencing such significant cancer expenses, everything decreases, including cable, cell phone service plans, gym memberships, groceries, and other incidentals.

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New rule: Never go to a Cancer Doctor at the doctor’s request on Good Friday. Why? The news is unlikely to be ‘good news.’ During my April 4th clinical appointment, my Primary Care Physician recommended a friend whose a Cancer Orthopedic Surgeon. “His office will likely call to schedule you in a couple of weeks. He might be able to assist with pain management. I will forward his office your records this afternoon.” Several weeks later never happened; I received the call April 5th. 

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Weird. Just Weird

There’s a moment in everyone’s life when the morning alarm sounds, and you smack the ‘snooze button.’ “Oh God,” we whisper, “Just five minutes more.” That very moment begins another day of weirdness. For instance, I chose to drive to work yesterday. And there’s that weird moment when a white Toyota confused me. At that moment, I lost orientation. Where am I? What am I doing? Where am I going? Why am I here at this spot? What the hell is a white Toyota out here? I couldn’t place my finger on it. Ten minutes later, my brain operated flawlessly. It was weird.

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