Tag Archive: Kappa Light Chain Deposition Disease


Let me set the scene. It’s Friday morning. I’ve just used the bathroom, a perfectly ordinary human activity, except now I’m standing there wondering why my body has decided to add a little encore. A few uninvited drops. No reason. No warning. Just my nervous system freelancing.

Welcome to my life, where even the most mundane bodily functions have become a neurological adventure.

That was Friday morning. By Friday night, I had a severe ache digging into the left side of my eye socket like someone had parked a Buick behind my face. I took two Advil and went to sleep like a reasonable person. A hero, even. At 2:45 a.m., I was awakened by what I can only describe as my body filing a formal complaint with management. Not quite nausea. Not quite dizziness. More like my stomach and my inner ear had called a joint emergency meeting and didn’t invite the rest of me. I genuinely thought: this is it. This is how it ends. Not fighting a villain. Standing in the dark next to my bathroom at 2:45 in the morning.

I took a clonazepam and an ondansetron, because apparently I’ve become the kind of person who has a 2:45 a.m. protocol. And it worked. I went back to sleep. Superman lives to save another day.

But here’s the thing they don’t tell you about being Superman: the cape gets heavy.

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I woke up this morning to find that both of my ankles had apparently convened an overnight meeting — without me — and decided to stage a slow-motion protest. Not painful, exactly. Just wrong. Not right, in that maddening way where you cannot even properly complain about it because there is no word for the sensation of joints that feel like they have been partially replaced with wet sand.

The knees held their own grievance session last night, especially on the stairs. And so here I am, making my best impression of a fully functional human being, having negotiated with my own body just to get to the coffee maker.

If you have ever thought to yourself, I did not sign up for this shit. Well, welcome. Pull up a chair. Mine is the one with the good armrests for getting up from.

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People often ask what it’s like living with the unknown. Truth told, this morning started exactly where last night left off.

Brain fog.

It’s not romantic. You know, that Hollywood mysterious scene in movies where the protagonist stares pensively out a rain-soaked window and see the person forever adored. No. This is the kind where you open your eyes and your first genuine, unfiltered thought is, “Why the fuck did I wake up?” Then, looking at the ceiling, “What the hell God?”

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