Archive for October, 2021


“It’s unusual for a person at your age,” the radiologist said. Hint. When a clinician claims you’re ‘unusual,’ that version of ‘unusual’ can infer many things, from good, bad, funny, ugly, or any combination thereof. “During your last scan, we detected something that requires a second look. Scans detected a 3-millimeter section under the left ulnar styloid bone. It could be nothing, could be something. Regardless, we’ll need to perform a Cat Scan or MRI, depending on your doctor’s request.”

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Chopsticks

“Chopsticks,” I murmured to myself. Six months ago, I could use chopsticks so well no one would have known I had medical issues. However, last Friday, I could barely manage to hold and align chopsticks. Everyone looked at me out of the corner of their eye. Smiling embarrassing so, I shifted to laugh it off, “Chopsticks.” Chopsticks wasn’t the word I wanted to use: I wanted to cuss. I wanted to shout, “F**k it” or “God damn it.” However, in the civility of dinner, I muttered, “Chopsticks.”

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Parkinson’s scared me more than cancer. Those words bored through my thinking in late February 2020 and remain persistent now. Unfortunately, nearly every terminal patient who’s taken a stoic stance (remaining in control), there comes the point in time during the disease when you lose control. I remember watching Ted Koppel’s Nightline program when Morris Schwartz (Tuesdays with Morrie) talked to Nightline host Ted Koppel. “Well, Ted, one day soon, someone’s gonna have to wipe my ass. It’s the ultimate sign of dependency. Someone wiping your bottom. But I’m working on it.”

Control. I thought of the word ‘control’ when my Neurologist informed me I moved from Parkinson’s Stage 1 to Parkinson’s Stage 2. In Stage 2, Symptoms start getting worse. Tremor, rigidity, and other movement symptoms affect both sides of the body. One can remain independent, but daily tasks become more difficult. And that’s where I’m at: Life is more difficult, more complicated, and more painful in the ass.

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As I’ve done every week for the last eighteen months, I checked the most recent COVID-19 numbers. Compiling COVID statistics for 38 states and 140 counties requires significant effort. First, one has to ensure infection rates, hospitalizations, and deaths are accurately recorded. Next, you must interpret that data and decided what information must be presented to executive management. Management then reviews that information and determines how specific healthcare operations in each location will respond to projected trends. For example, Alaskan healthcare operations, where care is rationed, require a different response than California, where COVID is declining.

However, times are different than a year ago. After a year and a half, your team gains credibility. There is a well-developed cadence to performing these calculations and presenting useful, intelligible information. Then again, eighteen months ago was a different era, when people clamored for information and longed for some respite at home (or working from home). Throw in some false pandemic information, fake medication news, fake vaccine news, fake ‘stolen election’ allegations, and an attempted January 6th insurrection have pushed people to a breaking point. 

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Clinicians inform me that a person with bradykinesia moves, just slowly. I wonder how much of that is true. Some days, I feel as though my fingertips and hands are experiencing small repeated 6.5 earthquakes. If I were James Bond, I would order a Martini, “No need to stir. I can shake it myself.” It’s a form of ‘slow death.’

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