Tag Archive: Pain


Someone asked a question recently that I haven’t been able to shake.

“Is the clarity you have—the way you hold things—is that the illness teaching you? The Buddhist philosophy? Or just God quietly doing what God does?”

I sat with that for a while. Which, for the record, is one of the few things Parkinson’s has genuinely improved. I sit with things now. Mostly because getting up requires a strategic plan, advance notice, and occasionally a spotter. But the question deserved more than a clever deflection. The honest answer is: I don’t know.

I’ve lived long enough to understand that “I don’t know” is not an admission of failure. It’s usually where the interesting stuff lives.

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Nobody warned me that 66 was the year my body would take a good hard look at my life choices, print out a PowerPoint presentation, and schedule a mandatory all-hands meeting. No agenda. No RSVP. Just a pop-up calendar invite that said: ‘Your body requests your immediate and undivided attention.’

I didn’t RSVP. My right foot showed up anyway.

It started subtly. I went to pivot left — a perfectly normal human maneuver I’ve executed maybe a hundred thousand times — and my right foot looked at me like I’d asked it to speak Mandarin. It dragged. Across the floor. Like a disgruntled coworker who just found out they’re not getting a raise. My foot staged a small but unmistakable protest, and I went down.

I didn’t fall. I performed an unscheduled relationship check with the floor. It went poorly.

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I woke up this morning to find that both of my ankles had apparently convened an overnight meeting — without me — and decided to stage a slow-motion protest. Not painful, exactly. Just wrong. Not right, in that maddening way where you cannot even properly complain about it because there is no word for the sensation of joints that feel like they have been partially replaced with wet sand.

The knees held their own grievance session last night, especially on the stairs. And so here I am, making my best impression of a fully functional human being, having negotiated with my own body just to get to the coffee maker.

If you have ever thought to yourself, I did not sign up for this shit. Well, welcome. Pull up a chair. Mine is the one with the good armrests for getting up from.

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I Thirst

I am tired, but my body refuses to die. It’s the constant hum of pain. Living in a body that constantly hurts is an exhausting experience. It’s not just the sharp, stabbing moments or the dull, throbbing aches; it’s the constant, low-grade hum of pain that fills every quiet moment. It’s the kind of tired that sleep can’t fix, a deep-seated weariness that seeps into your bones and colors every thought.

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Quick Update: It’s a Bitch

When I signed off in April, I did not check my email. Upon logging in this afternoon, I read several emails from readers requesting an update. So, I will start by stating that I feel a little like Josie Rubio (A Pain in The Neck cancer blog), who said to some effect that she was beginning to feel good and thinking of returning to work. Of course, Ms. Rubio never returned.

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Pushing Through

I don’t think about overcoming cancer. I can’t. Multiple Myeloma is undefeatable. Most days, one can hardly recognize that I fight past overwhelming fatigue and nausea. I do it because I have no choice. I am just an average Information Technology worker trying to make it until 65 when federal healthcare benefits become available. I could work from home, but I chose to push myself. The question therein is, “Why?”

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Crazy

I spent several hours in the hospital yesterday. It wasn’t business; it was personal. Stomach and colon pain swallowed my life a little after noon. I could barely breathe, sit, lay down, or walk. Sweat rolled down my face and soaked my clothes. The strange part, I drove myself to the hospital. Afterward, I drove back home. I must be crazy.

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2:36 AM

Pain is swallowing my body. Walking 250 steps or more brings extreme tightness in the groins both of both legs and lower calves. To that, former WGN radio host Al Lerner would commically retort, ‘a groin is a terrible thing to pull.’ Spasms crept into my right bicep, forearm, through to my fingers, and radiates significant pain when lifting anything above the shoulder. Through it all, I keep reading previous posts on ‘What’s a good life’ and asking myself, “Am I living it?” That exchange is often followed by remembering something from my past, usually negative, and trying to mentally reconcile that person looking back through the mirror.

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We Don’t Know

“We don’t know” comes in many forms. For example, the car mechanic quizzed about a part failure often states they don’t know why it failed. The heater-air conditioner technician told me two weeks ago that he did not know why the blower motor was leaking oil. “It’s old.” Children who spray-painted the car are asked why often retort with “I don’t know.” Then there are medical doctors.

“Doctor, I was cutting vegetables. My right wrist, elbow, and shoulder hurt painfully with each cut. So much so that I had to stop.” The doctor looked at his computer, “That’s a great question.” The comment ‘that’s a great question’ is like, “We don’t know.” Of course, the pain could be tendinitis, Carpal Tunnel Syndrome, or “You sleepwalk and play drums all night.” A lot of times, doctors don’t know.

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Setbacks

Setbacks are hard. Post-COVID has been annoying, with one day being good and the next being bad. For instance, Sunday was great. I experienced a bountiful amount energy I hadn’t had for weeks. Mentally, I was clear. And lastly, I experienced little to no residual pain. In fact, I was damn well ready to call COVID a day, “I am so done with this. Good riddance.” Then Tuesday arrived.

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