The first time I went public with Parkinson’s, my bladder made the announcement. I have not talked about Kappa Light Chain Deposition Disease. It’s the enemy within. It’s the cancer that will likely kill me.
Consider this the follow-up nobody asked for. You’re welcome.
There is a strange phenomenon that occurs when you have been quietly carrying a serious diagnosis for years. People see you and notice things. Weight loss, for instance. It’s the saggy skin laying under the clothes. People mean well. They truly do. Which makes it only slightly more exhausting when they perform their enthusiasm directly at your face.
A coworker I had not seen in years lit up. “God, you lost so much weight. Awesome. Awesome.” He kept going. The full production. Wonderful. “Great diet. Looking good.”
I finally said, “Well, thanks. But I didn’t intend to.”
He blurted, without missing a beat, “Well, I thought you were going to say cancer.” And he laughed.
“Well,” I said. “Kind of was.”
I shut down the room.
In the silence that followed I explained how I visited a Long-COVID clinic with what I thought was Long-COVID symptoms. Four weeks later, they informed that they did not find Long-COVID. “Nope, Not that.” they said. “But we did find cancer. It’s called Kappa Light Chain Deposition Disease.”
I looked into the room and beyond the faces, “Kappa Light Chain Deposition Disease was caught early. Treatable, not curable. I am still here.”
I do not entirely know what made me say it out loud. I had not planned to. But I was tired — tired in a specific and accumulated way that has been building since 2021 — tired of managing other people’s comfort at the expense of my own truth. The person was not diminished by my honesty. He simply encountered it. There is a difference.
I felt a flicker of guilt afterward. Maybe I made him look small. But I have been making myself small for years, quietly editing my reality so that the people around me could stay comfortable. My mother still does not know. When I told my brother in 2021 that I likely had cancer, he suggested I get a second and third opinion and call him back.
He never called again.
I am not telling you this for sympathy. I am telling you because this is what chronic illness actually looks like from the inside. Not the pamphlet version. Not the sunrise version. The version where you carry it alone for years and one day, at a lunch table, you just stop.
The room going silent was not a failure. It was the room making space, finally, for something real.
Let it.
My friend recently asked whether I thought I could make it to eighty.
“No,” I replied.
There was no drama in it. No tears. Just the honest answer to an honest question. I have no chart, no prognosis, no doctor’s timeline to support this conclusion. It is an internal compass. A gut feeling that has not shifted. My body has been telling for some time, “Hey, dude. I am in the late autumn of life.” I mean that not as metaphor for despair, but as precise description of where I am standing.
Late autumn is not nothing. Anyone who has ever walked outside in October knows this. The colors are sharper than summer ever managed. The air has weight and intention. You notice the particular slant of light, the sound of your own footsteps, and the noise of earlier seasons fading out completely. There is a quality of attention that only arrives when you understand, somewhere below thought, that the days are getting shorter. I have that attention. I did not ask for it. Yet, I would not trade it.
I think about a line from the film Wyatt Earp upon waking. Doc Holliday looks to Wyatt and says: “I wake up every morning looking in the face of Death, and you know what? He ain’t half bad.” It’s not bravado. It is not performance. It is the quiet recognition of someone who has made peace — not with dying, but with the face at the window. The one that is there whether you acknowledge it or not.
My soul has its own version. It sounds something like: I am exhausted. Yet I wake up. Why, God? Why? And then my body, without waiting for an answer, gets up anyway. The soul asks the question. The body ignores it, places feet on the floor, and gets up. And God has yet to explain himself.
Something keeps me moving. And me? I stopped demanding an explanation.
That unanswered why is not a crisis of faith. It is, I have come to believe, the most honest prayer a person can offer. The kind that doesn’t dress itself up. The kind that simply says the true thing out loud and waits in the dark. Both the Buddha and Jesus, in their considerably different ways, arrived at the same stubborn conclusion: suffering is not the enemy of a meaningful life. It is frequently the entrance to one.
Buddhism teaches anicca — impermanence. Everything changes. The body you had before diagnosis is gone. Grieving it is human and right. But the awareness behind the tremor, behind the weight loss, behind the Tuesday surprises — that is not diminished. It is, if anything, more awake than it has ever been. The Buddhist teacher Shunryu Suzuki wrote that in the beginner’s mind there are many possibilities. Parkinson’s and cancer have a way of making beginners of us all. Every walk is new. Every day arrives unscripted. That is loss, yes. It is also, quietly, a kind of freedom that the healthy and hurried rarely find.
Christianity offers something equally uncompromising: the insistence that nothing — not illness, not humiliation, not the brother who never called back — is beyond redemption. Paul wrote that he had learned, in whatever state he was in, to be content. Not cured. Not comfortable. Not finished grieving. Content. There is a profound difference, and it is everything. Grace, in this tradition, is not the absence of hard things. It is what shows up inside. It’s the uninvited, unannounced, the way a strange peace can settle over you when you realize the worst has already happened and you are still, somehow, walking.
I have been held by something larger than my diagnosis. On the hardest mornings, when the soul is asking its unanswered question and the body is getting up anyway, something is there. I cannot fully name it. I do not need to.
Doc Holliday was right. He don’t look half bad.

I don’t know what to say when I read your posts, except to say that I feel the honesty of your writing. I will say that one thought that occurred to me reading this is Edgar Cayce’s “mind is the builder”. Saying anymore may seem preachy. As always, wishing you peace of heart and calm of mind each day.