Category: Cancer


Last night, Kanako, a dear friend who is no longer with us, visited me in a dream. Her presence was comforting, and the message she brought was simple, yet profound. “Not too long. You’re almost there.”

Continue reading

Quick Update: It’s a Bitch

When I signed off in April, I did not check my email. Upon logging in this afternoon, I read several emails from readers requesting an update. So, I will start by stating that I feel a little like Josie Rubio (A Pain in The Neck cancer blog), who said to some effect that she was beginning to feel good and thinking of returning to work. Of course, Ms. Rubio never returned.

Continue reading

Relinguishing Control

Suleika Jaouad stated that to be a patient is to relinquish control. At this moment, I feel the same. Maybe I was naive, but I thought I could stay in control, but my body is losing the battle. Yes, of course, one loses your body to medical clinicians, treatment strategies, and physical breakdowns. However, my latest battle was humiliating: blood. Blood everywhere. And I mean a lot of it.

Last night, I traveled back from Tucson. The plane ride was relatively uneventful. No delays. The weather was fantastic. The only passenger screaming was a baby in the back of the plane. I rode first class, and no passenger attempted to open a door. However, what typically starts out well can go horribly wrong with little warning.

Continue reading

The vehicle for my mother’s lease was ending, so the big task for February 12th was to visit the Honda dealer. After several hours of weighing the pros and cons, she purchased her current Civic HR-V. The night had already swallowed the remaining daylight, and we decided to have dinner at the International House of Pancakes (IHOP). After receiving our meal, we sat in the corner booth, and she asked for details about Light Chain Deposition Disease (LCDD). It wasn’t the conversation I thought about having at an IHOP over scrambled eggs, but I provided high-level information about LCDD, testing, and symptoms. “Well, hopefully, they’ll eradicate it from you this year.”

“Mom, I am terminal. It’s unclear when, maybe in 6 months or maybe ten years, but unless some miracle pops on the horizon, LCDD will likely end my life. Doctors hope to keep my body at its current level of dysfunction.”

Continue reading

Television is a vast pornographic wasteland of scam health products. I received free samples of Balance of Nature, green seaweed tablets from Asia, and other supposed natural health items. Forbes reviewed Balance of Nature, noting that it has received warnings from the U.S. Food and Drug Administration (FDA) of unverified health claims. I also received an article (and subsequent invitation) to attend a consultation with a Missouri practitioner who provides stem cells. I declined the offer after noting that state investigators once determined the clinician’s cell-based regenerative medicine diagnosed and treated bogus illnesses and repeatedly ordered unnecessary and excessive lab tests. However, the truth is I want to die. 

Continue reading

72 Days

November 13, 2023, seems like forever. [Between then and now] That’s 72 days. That’s two months and 11 days (seventy-two days) since my last post. The time variance seems like forever. Or, borrowing from David Whyte’s Heart Aroused, I turned my head for only a moment, and it appeared forever. I missed my Thanksgiving, Christmas, and New Year’s Eve posts. It’s been a hectic 72 days. 

Continue reading

Pushing Through

I don’t think about overcoming cancer. I can’t. Multiple Myeloma is undefeatable. Most days, one can hardly recognize that I fight past overwhelming fatigue and nausea. I do it because I have no choice. I am just an average Information Technology worker trying to make it until 65 when federal healthcare benefits become available. I could work from home, but I chose to push myself. The question therein is, “Why?”

Continue reading

2:36 AM

Pain is swallowing my body. Walking 250 steps or more brings extreme tightness in the groins both of both legs and lower calves. To that, former WGN radio host Al Lerner would commically retort, ‘a groin is a terrible thing to pull.’ Spasms crept into my right bicep, forearm, through to my fingers, and radiates significant pain when lifting anything above the shoulder. Through it all, I keep reading previous posts on ‘What’s a good life’ and asking myself, “Am I living it?” That exchange is often followed by remembering something from my past, usually negative, and trying to mentally reconcile that person looking back through the mirror.

Continue reading

Work, exhaustion, movement. Work, exhaustion, movement. If someone asked about my life’s cycle, that would be it: ‘work, exhaustion, movement.’ It’s no epic mystery. And at the end of the day, most cancer patients probably believe few know their cycle or the actual intricacies of living day-to-day or existence. There’s no magic. There’s no spark. No one knows what it’s like to sit in some poorly designed cancer waiting room and have some clinician take away the last remnants of their life.

Continue reading

Invincibility

A friend knocked at my door and dropped off a bottle of seaweed pills. “It will fix metabolism and fight cancer.” Of course, I accepted the offer unconditionally. After some small talk, I shut the door and tossed them on the counter behind my toaster with the other worthless crap I received. I don’t take ‘magic’ supplements because they don’t work. And technically, it’s hard to do something when there’s a lack of faith. Supplements do not make you invincible.

Continue reading