Tag Archive: Death and Dying


Dying is hard. The body refuses to give up. For others, the physical part of death is not the barrier. Instead, information processing is the hardest culprit. There are too many issues to address before the end. In other words, we run out of time. ‘Death’ grabs us when least expected and refuses to release us. Describing my process is like being in the grip of a boa constrictor.

Boa constrictors are not venomous. Instead, they squeeze the victim to death. The squeezing overwhelms the circulatory system, and the prey dies from ischemia. And therein I lay. I came to the acknowledgment this week that my body is slowly giving way. Life a slow-motion film, the amount of dizziness, the pain just below my rib cage, and the persistent fatigue slowly crept in each subsequent week. I sense it. No. Correction. It squeezes. I feel it. There are some days when I wish to fall asleep and call it a life.

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A few hours before my physician’s appointment, I read Dr. Rebecca Elon’s story on the Kaiser Health News. Living in the age of COVID, she lost her husband, experienced the death of a sister, and watched her mother battle dementia. The geriatrician and policy expert made a striking comment. “Reading about caregiving of this kind was one thing. Experiencing it was entirely different.” Elon’s statement struck so deep that I took the time to not her comment. Thinking Elon’s quote was a worthy citation in a future blog post, I never imagined referencing hours later, just after my doctor’s appointment.

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Katie Cassidy revealed that her father’s (singer David Cassidy) last words were ‘so much wasted time.’ Cassidy’s last words have been on my mind for weeks, and none more present while I have been cleaning out my home. In Sweden, this type of decluttering called döstädning— meaning ‘death’ and städning meaning ‘cleaning. In the final preparation of my departure, I don’t want others to be spending hours clearing out unnecessary items. Therefore, I am unloading all I can while alive. As I sorted, I kept thinking, “Why? Why did I waste so much time collecting this stuff?

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It was late summer of 2010 while walking near the Hudson River shoreline when I heard Chris Carter talk about his retirement. Carter was on the Mike & Mike Show when a host asked Carter how he knew it was time to retire. “Mentally, I was still sharp. I could read the defense, understand the play, and mentally perform. Unfortunately, my body was no longer responding to what I was telling it to do. There was a delay, a gap, or in some cases, an inability to perform. That’s when I knew it was time.” I couldn’t relate. And for the better part of a decade, I never understood what Carter meant. Very few will ever experience a mind-body relationship like professional athletes. But these past ten days have provided one hell of an education. 

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Since Sunday, I have been feeling fatigued. It is simple to describe: On and off feelings of profound fatigue or weariness. That description does not include mental fatigue, the type where I sit at work and ask what I am doing? I have compared such fatigue to being listless, drained, too tired to walk, and too tired to think. A cancer patient was so lethargic that she sent an email canceling her treatment appointment, to which her physician called, stating her body required fluids. “Ah,” I wondered aloud, “Maybe I require fluids.” However, upon seeing several empty bottles of ‘Ice Mountain’ natural spring water (or so they say), I quickly doubted my conclusion. I know what ‘it’ (the symptoms) meant, but I have been so adept at postponing anything relating to dying that I put it out of my mind.

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The day-in-day-out process of Parkinson’s decline is slow and methodical. Parkinson’s is a slow progressive pain in the behind. The stage at which the symptoms appear, progress, and develop is tedious. Last week, brain fog. This week, not so much. However, this week, my hands’ fumble. Next week, maybe they will not.

My case manager got to the heart of the situation, “As you experience your body declining, ‘What are your thoughts?'”

“It’s confirmation my body is dying.”

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The Daily Grind

There are times I wish I could go to sleep and not wake up. Not that I overtly want death, but rather, some days I am so tired to get up. Many days are rarely the same. I feel great by day. By night, my knee and Sigmoid Colon ache, and a rush of blood oozes forth that’s accompanied by a continuous backache. All of which forces surrender by 8:30 PM with a silent scream, “Fuck it.” Yet, the weird or odd timing of statements between friends compound these endless cycles. 

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The Banker’s anonymous website relayed a story, “A buddy in New York used to tell me that the right way to manage your money is to have just enough to cover your bills until the day you die, and then bounce the check to the funeral home. Man, that poor funeral director.” While it was a joke, there is a speck of wisdom in the humor. My recent burst of wisdom come from two women. I call it, “A Tale of Two Women.”

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Back in 2019, I would have never imagined my body’s survival into 2021. I expected to have already seen Heaven’s pearly states, a thorough life review, and some final judgment, a curt, quick command, “Away with ye.” Two months into 2021, I can honestly attest that this has been a year of death, just not mine.

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Nearly every person with a significant disease experiences peaks and valleys. One is likely to have weeks or months when everything is fantastic, bringing some level of normalcy. There are other times when you understand what’s coming is damn serious. I would categorize this past Thursday [February 11] as ‘other.’

I had been on a plateau for weeks, a state of neither God awful nor wonderfully great. Suddenly, I felt wet. It turns out I was bleeding. I had uncontrolled rectum bleeding oozed from the rectum and a dull pain emanated from the lower left part of the abdomen, probably either in or near the sigmoid colon. Diverticular bleeding occurs in the colon and produces bright red or maroon bowel movements.

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