Tag Archive: Faith


Following a Thursday afternoon meeting, an attempt to stand proved futile as my legs refused to cooperate. The simple act of rising from a chair seemed impossible, as every muscle in my lower body had become inexplicably rigid. I sat in the room as everyone signed off Microsoft Teams and pretended to fiddle with my phone.

Living with multiple myeloma presents many challenges that are not immediately visible to the naked eye. Living with Multiple Myeloma means grappling with the uncertainty of how the disease will manifest itself. One of the less-discussed consequences of this condition is the potential impairment of muscle function. These symptoms can significantly impact daily activities and overall quality of life, from sudden weakness and stiffness to decreased range of motion.

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Medical professionals have identified a relationship between hearing loss and dementia. Let’s review some basic facts first. The impact of audiology and memory care will exacerbate with an aging population. By 2050, the number of people older than 60 years will double, comprising 21 percent of the global population. As a result, those living with dementia will triple and cost nearly $2 trillion. 

Though the exact association between the two conditions has not been identified, recent studies have proposed several theories. First, there is a possibility that hearing loss and dementia share a common cause. Thus, hearing loss and cognitive decline occur in parallel. As the brain degrades, so does hearing. But statistically, that’s not proven true. A second theory proposes that hearing loss places an increased demand on cognitive resources. Thus, information degradation occurs as resources are removed from cognitive tasks to support hearing. In such a scenario, listening causes the brain to work harder, burning out. The last theory proposes that a person with hearing impairment withdraws from social engagement and, therefore, experiences less cognitive function to interact with their environment. 

The theory gaining the most traction is the second: that hearing loss places an increased demand on cognitive resources. Individuals who have untreated hearing loss (even mild untreated hearing loss) find social participation requires more brainpower, which drains mental effort. This process makes the brain more likely to develop dementia.

So, why am I posting this information on a blog? Well, I am one of those impacted by hearing loss. Additionally, I am 62 years old. Combining those two statistics with watching my father suffer from hearing loss made me want to get and use hearing aids. Yet, the years-long search for the perfect hearing aid was frustrating.

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Since Sunday, I have been feeling fatigued. It is simple to describe: On and off feelings of profound fatigue or weariness. That description does not include mental fatigue, the type where I sit at work and ask what I am doing? I have compared such fatigue to being listless, drained, too tired to walk, and too tired to think. A cancer patient was so lethargic that she sent an email canceling her treatment appointment, to which her physician called, stating her body required fluids. “Ah,” I wondered aloud, “Maybe I require fluids.” However, upon seeing several empty bottles of ‘Ice Mountain’ natural spring water (or so they say), I quickly doubted my conclusion. I know what ‘it’ (the symptoms) meant, but I have been so adept at postponing anything relating to dying that I put it out of my mind.

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Nearly every person with a significant disease experiences peaks and valleys. One is likely to have weeks or months when everything is fantastic, bringing some level of normalcy. There are other times when you understand what’s coming is damn serious. I would categorize this past Thursday [February 11] as ‘other.’

I had been on a plateau for weeks, a state of neither God awful nor wonderfully great. Suddenly, I felt wet. It turns out I was bleeding. I had uncontrolled rectum bleeding oozed from the rectum and a dull pain emanated from the lower left part of the abdomen, probably either in or near the sigmoid colon. Diverticular bleeding occurs in the colon and produces bright red or maroon bowel movements.

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Oftentimes we choose badly. We barter on for the best opportunity to continue whatever morsel of time: strength, mental acuity and a life previously known just several weeks before. It is fantasy mind you. Yet we barter it all, even with the risk of a prolonged and terrible death–which is precisely what most will get.

Technically, the operation this old man received was a success. And two weeks later, the 88-year-old man and his 82-year-old wife, sat in the vascular surgeon’s office to hear the prognosis.

Wow,” said Doctor S. “The stent looks great. The ultrasound shows the artery is wide open.”

The wife smiled. The man grunted.

We’ll see you in two months.”

The stroke was significant, and he never recovered. In skilled nursing, the old man could barely remember why he was there; he spoke his son’s name when shown a picture of his dog; he neither say his wife’s name nor his son’s; and looked frail.

That old man is my father.

As I tried to explain to my mother, he could not be cured. Deep down, she knew there was not a cure. But admitting as much and assisting him was beyond her capability. Maybe, just maybe, that stent operation would produce a ‘miracle.’

Death, of course, is not a failure. It’s normal. Throughout the last decade, I repeatedly told my mother that modern scientific and medical marvels can significantly alter the course of human life. We can now push the final moment of many diseases farther outward. People can live longer than any time in history. In doing so, we hide the deeper reality, that such significant extensions do not come without cost. Eventually, the end makes itself known, whether it be in the lungs, brain, spine, kidneys, or heart. From there, there is no cure.

We left the doctor’s office this past Thursday knowing we’d never see dad at home again. Instinctively, my father knew he would never see his favorite lap companion (his dog) and spend Sunday’s petting while simultaneously watching Tiger Woods try for another victory. And, I wondered in the past few nights whether my mother’s ‘miracle was more for her or for my father. She always believed dad was the outlier, the guy who’d have a major injury at ninety and by ninety-one, climb the Himalayas’. Giving up meant giving up the life they built. Now, could either endure.

How did America become a world where we either have to go down with the ship or cede complete control of our life to live in a nursing home? Television is filled with young doctors performing endless miracles. We perform medical procedures (like stents), pat ourselves on the back and dish off our elderly into some unknown distant nursing home.

The reality is that most suffer alone. We depend upon nature and chance. Maybe we toss in a few overly quoted scriptures and beg for a miracle. Instead, society knowingly banishes people to Medicare/Medicaid with little options … too poor … too frail … too senile … or too broken down.

I studied my father for one last moment. “Welcome to your future bitch,” life responded.

In his book The Heart Aroused, David Whyte wrote of a time he found himself working with a roomful of thoughtful managers. The group was looking at the way humans find it necessary to sacrifice their sacred desires and personal visions on the altar of work and success. Whyte instructed the class to summarize their life in one sentence.

In the back of the classroom, a woman read slowly, unaware that the silence struck the room. 

“Ten years ago . . .

I turned my face for a moment, and it became my life.”

Whyte was demonstrating how we have the patience for almost everything, but that which is most important. We look at the life of our own most central imaginings and see it beckon. For the most part, we neither dare to follow it nor leave it. We turn our face for a moment and tell ourselves we will be sure to get back to it.

I read Whyte’s book in 2002. Every once in a while, the urge to write my one-line life summary resurfaces. In a darkened stairwell my left hand shook uncontrollably from Parkinson’s. “Just one of those days,” I muttered. In utter exhaustion, I quickly penned, “Days became decades.

“Days became decades.”

Almost everyone I know understands this sentence. Work hard for your goals, sacrifice, commit to the ideas of others and forget your own, receive promotions, and get rewarded for success. Through the years, your hard drive gets full, life fills, investments pay off. Yet you stop to look around, and nothing seems familiar. 

Weariness is the fulcrum for introspection. At 59, doctors claimed I had approximately two good years. At 60, eleven months remain. I descend into a cadence of thought of just how I got here. I have a ton of shit, but little else. My inner soul longed for a truer sanctuary, a hunger for something money can’t buy. 

St. Gregory once said, “Grace is given not to them that speak their faith, but to those who live it.” I’ll have to admit, I haven’t lived in faith until about eight years ago. I mean, I had faith, but I hadn’t lived in faith. Right now, amid a pandemic, amid all my suffering, I am just plain weary. Exhausted. Exhausted of words, ideas, thought-provoking mission statements such as “First things first” or “Turn the ship around.” When people die every few minutes, such things seem rather small.

Moving to the bathroom, I splashed water unto my face. Looking upward to the mirror, I asked the man on the other side, “Where does this end?” I didn’t know.

The Response

Lovers of words and computers are prone to endless study. Yesterday, my boss asked if I had performed any research. With accouterment of medical support alarms, laughter was my only reply. 

We’ve become so involved in all things that we forget to live. We are propelled to make the best use of time, study the world, and absorb everything. Interactions become “deep,” “philosophical” or “analytical.” And when we’re done, there’s no joy.

The real proving ground of living a faith-based life does not reside in our ability to study it. It’s about how we treat one another, and whether we’re fully present in each moment of service. Can we find pure gratitude, a joy in the heart, a desire to serve? 

Faithful living is not an intellectual assent. Service to those in need is a path, it’s faithful living. The real proving ground of our faith isn’t how articulate, or how deep it may sound, it’s how we live. Thus, when I looked in the mirror, the man looking back responded: 

“… if there is no room for humanity, pain, sweat, doubt, and discouragement if your life, then you need to change who you are.”

Man downhill observing mountain landscape at sunset

Forgiveness is a tough exercise. It’s necessary for peace in life. It’s natural to hold onto the wrongs of life and vowing to get even at some future day. Unfortunately, it rarely works out.

I passed by a COVID patient wishing for some old-time jazz music. I am not talking about the 1970’s jazz scene. I’m referring to classical legends such as Glen Miller. The gentleman tried humming PEnnsylvania 6-5000, but couldn’t remember the lyrics. PEnnsylvania 6-500 was a Glenn Miller hit lasting twelve weeks. Miller wrote the song in an era when most local telephone calls in large cities were dialed directly and required an operator.

PEnnsylvania 6-5000 was recorded by many stars, including the Andrew Sisters. Unfortunately for the Andrew Sisters, Maxene and Patty Andrews had a falling out. Some claim the issue was due to a family estate, others claim it was from show royalties, and according to a documentary, Maxene Andrews lived two parallel lives: the professional and personal. For years Maxene Andrews had a relationship with her manager, Lynda Wells.

For thirteen weeks, the Andrew Sisters sang together but never spoke to one another. LaVerne passed in 1967, Maxene in 1995, and Patty in 2013. Maxene and Patty never reconciled.

I hoped the patient I passed was not in a similar situation. I pulled out a cell phone, opened YouTube, and placed the phone by the man’s ear. The Andrew Sisters filled the room with angelic harmony. The softly smiled and comfortably rested his hands on his chest.

There’s always a hearing. It comes to us in dreams, or maybe a song, after a reminder of some long lost love or slighted friend. Perhaps we’ll hear that voice at a gravesite, hospital, or in the wake of a simmering feud. However, it comes, it is the voice of God calling, beckoning to remind us of the power and love in forgiveness.

Some of us will wrestle with its authentication. Was it divine? Maybe it was the wine? Yes? No? But if we’re willing to risk abandoning that which matters so little, perhaps we can discern its lesson and experience the power of love – the ability to forgive. The power of God’s love propels us to understand that we can’t live in the now while holding onto yesterday.

Our journey will define our lives. The best route is one that lived in physical, spiritual, geographical, and emotional balance. Yeah, we’ll all walk the valley of doubt, difficulty, anger, and sometimes hatred. Through all of it, we’ll learn to navigate, meet God in the doorway of eternal love, and finally reconcile all that we were, all we are, and all we’ll ever become. It should be the warmth of intimacy, not the allure of fault.

A few minutes later, I left my jazz aficionado asleep, caught in the memories of an earlier life. I could catch snippets and slight moments of a dream. Was that dream from early life? The Andrew Sisters? Glen Miller? Or was the dream of some long feud remaining unresolved? Hard to say. Whatever dream occupied him, I hoped it indeed was peaceful. I hope it was love.

My AAA Map

After posting the ‘AAA’ blog, a reader privately asked if I had a map, “Did I, in fact, ever get my own map?”

Before Google Maps, almost everyone went to AAA. However, my first response came out of nowhere and quoted Ralph Emmerson Walden, “Nah. It’s the journey, not the destination.” Pausing for several minutes, I decided this required a more authentic response. So, I deleted my quick ‘on the fly’ response and tried again.

Looking over the lakefront below, I realize just how overused Walden’s quote is. During my first colonoscopy, my father said, “Remember, it’s about the journey.” The same quote was uttered before February’s tumor surgery. And almost every spiritual guru I read (Chopra, Dyer, Ziglar, and others) used a similar version, somewhere, sometime. In the world of instant selfies and ghoulish cartoon meme’s, overuse has weakened its meaning, and truth has faded from intent.

I knew nothing of the journey upon which I set out. It’s a pilgrimage, not a trail.

My first spiritual teacher claimed my path as “… the intentional act chosen to the unwilled rhythms of the body to breathing and the beating of the heart. It strikes a delicate balance between working and idling, being, and doing.” Elated by the teacher’s description, I told a friend. It turns out my teacher repeated the same to him.

Years later, I learned my map was unique only to me and remains harmonious to the rhythms of my body, and beating of my heart. It’s balanced. It’s a psychiatric highway of redemption, filled with ups and downs, cold and heat, tears and anger, peace, and tranquility. It changes daily. One day is unfamiliar; another, I intuitively know where I’m going.

Similar to the flowers of a garden, the smell of jasmine breathes during Spring. Summer is surrounded by endless wheat fields, and gnarled oak trees. In the Fall, men prepare the harvest. Winter’s frost nips at my lips, and hot coca fills my stomach. Life is an endless path.

Knowing that conquering challenges leads to transformation, I kept moving through the good and bad. There were times of homesickness, days of sadness, feeling lost, and moments of exhaustion. But these moments, these tests and trials, all taught something. The sun will rise again. Just keep walking.

Our map (i.e., your path, my path) cannot be borrowed. And, if it is to be real and personal, it has to be something that lasts through trials and stands through doubts, questions, and worries. The map is about finding meaning in the challenges and feeling joyful regardless of the pain. It’s faith.

If you think about it, someone has gone before us. In the movie The Polar Express, the conductor says: “It doesn’t matter where the train (map) is going. What matters is that you choose to get on.” Most already know their map. The choice is about getting on the train.

My map is the AAA’s version of ‘faith.’

Closing Thought

Desperate for help, the people of the village held a meeting under a huge oak tree in the village  square.

Let us pray,” said an elderly woman. “Only God can save us now.

Since the village had citizens of different faiths, town leaders held their prayer in the open, late that night, under the open sky. Suddenly, two young travelers entered town decided to join the prayer and opened umbrellas above them.

“Why did you bring umbrellas? Can’t you see there is no rain? That’s why we have come to pray?”

“Yes,” chimed the travelers. “We are travelers, and the map used by our forefathers brings us through this town. Therefore, we will pray with you.”

“We don’t know your forefathers. Who were they?”

“Our forefathers come from the family ‘Faith.’ And we’re positive our prayer will be answered. That’s why we have umbrellas.”

So … Who had a better map?

Our forefathers knew the path. They’ve been there before, and they’ll get you home.

Just a little over a week to surgery. Time to get some of this tumor out. I still haven’t told many people — I kind of arc around trying to find something to do. Not so much to keep the mind preoccupied, but more so because my current position is rather damn dull.

In regards to the surgery, I have no grand expectation of the outcome. Although, admittingly, I feel embarrassed. Why? Well, I think everything will come ok, that all this drama was for naught. I presume, post-surgery, some cute nurse will poke me in the shoulder and say “arise.” And just as Christ command, in awe, everyone will clap. Such fairy tales seem overrated. At surgery end, I will get up and walk. If I don’t, get me a television, a remote control, kettle chips, and a diet coke. I am ok with the outcome, regardless of the path to which God commands I endure. Sure, I wish to have tumors out. But with the diagnosis of an additional tumor, I strive to place one foot in front of the other and walk onward. 

My tale of woe is nowhere near as others. Dare to think God has dealt you a lousy hand, take a look at the Kobe Bryant or the Mauser family. Sometimes comparing life’s misery keeps one in check.

I am not a true warrior. You know, the guy who saved many. Such a viewpoint should never be mistaken for me. That’s not to say I didn’t do my part. I did. But I no longer consider my sacrifice anything special. Real heroes lay enshrined in national and local cemeteries. Those heroes fought injustice, battles, defeated Stalinism, communism, and hatred. Real heroes are victims who rose against the likes of Epstein and Weinstein. We should celebrate their sacrifice, not mine.

I can’t give this tumor more power than it has. It’s a foe that has no face, no body, nor motto. It does have an x-ray, yet appears as another blob. However, the deeper foe is age. Like David in Psalm 71:9, the very passage of time is a trial, and I utter unto God:

“Do not cast me off in the time of old age; do not forsake me when my strength fails.”

I’m assured He shall not.

In more youthful days, I ignored aging. The nature of humanity eventually outstripped youthful laughter. A year post-diagnosis, I accept certain ignoble truths: I neither bought this tumor nor the second. Amazon didn’t deliver it. Neither did a stork.  Accepting life and its frailty requires a different camera lens. I used to think being sick was a gift. In pure form, sickness taught many lessons. Yet I looked at it all wrong. I am a gift. I’m unsure why it took so many years to understand. Like a child, God held me abundantly. And I grew wiser and more mature. I wish more could have seen. 

Nine days from now, I will walk an uncharted course. There will be new roads with new choices. In preparation, I read Chapter 64 of the Dao De Jing. “A journey of a thousand miles begins with a single step.” 

And how will my journey begin? When I get off the operating table and walk, foot by foot — step by step.

With You

I bent over and couldn’t get up. As I said to the doctor, it’s as if my brain was sending signals, by nothing below my waist responded. These past several days, nothing seemed to work right. Back at home, I couldn’t get comfortable. Nothing soothed the pain, standing, sitting, or walking.

It appears I will suffer.

“Then, I shall suffer with you.”

Eventually, I will be unable to move.

“Then, I will sit with you.”

And if I die?

“Then, I shall die with you.”

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