Just before Christmas of 2023, I told my mother that I had a life-threatening disease with no known cure. I provided all the sordid details: how I did quite a bit of internet searching. Yeah, sure, I self-diagnosed myself with everything from work-related fatigue to amyotrophic lateral sclerosis, long-COVID, and finally, progressive supranuclear palsy. I researched close to twenty different diseases. But at the end of the day, the only thing that fits (at least for now) is Light Chain Deposition Disease (LCDD) or AL Amyloidosis. I took her through all the appointments, all the tests, and all my frustrations. I skipped the part about survival: from 1 month to 10 years. I mean, hell if I know.
Archive for January, 2024
November 13, 2023, seems like forever. [Between then and now] That’s 72 days. That’s two months and 11 days (seventy-two days) since my last post. The time variance seems like forever. Or, borrowing from David Whyte’s Heart Aroused, I turned my head for only a moment, and it appeared forever. I missed my Thanksgiving, Christmas, and New Year’s Eve posts. It’s been a hectic 72 days.